Mommy's Broken: Life with Lupus

6.20.2012

One year later-
I was dx a year ago with PAH. I have made it a year. Been thru alot of meds.
It's nice to have made it a year but its scary to think one years is over.
This past year has been a rollercoaster ride. It still hasn't settled down. Still have lots of things towork out. I hope that I have lived more this past year then I have the last 27.

The goal is to have another year in which I can do some wonderful things. I have a few things that I have to work on, that need to be done asap!! Guess I just need to get to doing them.

2 comments:

Anonymous22.6.12
Glad to find your post. I have two daughters 11 & 14. Not sure the ages of your girls. Would love to send you some clothes for them. Just let me know their sizes and I'll see if we have them. Not sure how to post name as I don't know my URL.
Michelle
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Why Mommy's Broken?

I have two little girls. Trying to get them to understand that Mommy isn't like all the other Mommies is much harder than you'd think. Doing it while trying not to scare them is even harder. I wanted to give them something they would understand on their level but wouldn't be lost on someone else. So I started by telling them that Mommy was broken, as to not tell them I am sick. Sick people get better, mommy doesn't. There are days when Mommy can get up and run around and do all those wonderful things; But there are days when Mommy has to stay in bed and rest. They have been able to take this information and be at ease about Mommy not being 'normal' or 'healthy'. Now I have a new challange of trying to let them know that mommy is not going to get to live as long as most other people. Telling your kids you are going to die is alot harder than you'd think.