Mommy's Broken: Life with Lupus: And the rollercoaster goes another round...

8.25.2010

And the rollercoaster goes another round...

and around it keeps going. I am having to wait for November to start taking Cellcept again. I took it for a month and that was the best 28days I have had in... drum roll... 8years. I feel bad that I couldn't have been better for my ex-daddy Z (health wise and emotionally). And sometimes it hits me how hard this is on the people who love me. I know I have a few people who have been with me for a long time (other than family). I want those people to know that I appreciate them and will always love them!
Just wanted to say THANK YOU!

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Why Mommy's Broken?

I have two little girls. Trying to get them to understand that Mommy isn't like all the other Mommies is much harder than you'd think. Doing it while trying not to scare them is even harder. I wanted to give them something they would understand on their level but wouldn't be lost on someone else. So I started by telling them that Mommy was broken, as to not tell them I am sick. Sick people get better, mommy doesn't. There are days when Mommy can get up and run around and do all those wonderful things; But there are days when Mommy has to stay in bed and rest. They have been able to take this information and be at ease about Mommy not being 'normal' or 'healthy'. Now I have a new challange of trying to let them know that mommy is not going to get to live as long as most other people. Telling your kids you are going to die is alot harder than you'd think.