8.26.2013

Update

Again I am sorry for the long long wait for an update. We have been moving and my computer went and we have no money for internet.... This list could go on forever but you get the idea. Now on to the updating.
We moved to Jasper AL. The place I am originally from and the place where Gwyn was living. Now Gwyn is in Birmingham (an hour away). I am so excited for her and her new school. I really believe that it is a great move for her, her father(Daddy Zach) and soon-to-be step-mom. They have a beautiful apartment and have great jobs. Couldn't be happier for the three of them. Of course that means We can only see her on the weekends. And we still have to share with her Nanna. Pout. Any time with her is wonderful. We have plans to move closer once we have the money. Or rather section 8 has the money.
My little sister, Taylor, has moved in with us. She is 19 and going to college. She got into some trouble. She is doing better. We just want her to have a soft place to fall and be around people she knows support her. I am very proud of everything she has done in the past 4 months. She has done a ton of growing up. Can't wait to get our three bedroom place so she can have her own space. I can't imagine what it is like sharing a room with a 9 and 10 year old.
Rory started school today. Homeschooling again this year. We are very happy with her progress and believe that we have made the best choice for her. I know there are lots of people out there who believe that I am not doing right by her. Believe me when I say that if I notice she isn't up to par I will put her in school. Until then we will keep doing it our way. She is happy and creative and can express herself well.
My health:  I am now seeing a palliative care dr. She is WONDERFUL and UNDERSTANDING. I believe I am finally on track to live a fuller life. She is giving me tools to help me be more active. Not just pain relief thru pills but a wide range of options and programs. I am going to take advantage of everything they offer. I want to be as involved in my wellness as I can be. I am already seeing results with what little we have started with. She knows my age and doesn't fault me or hold back because of it. In fact she sees it as a reason for me to get as much help as possible. That way I can enjoy my daughters childhoods. I can participate in my own life, instead of watching it go on while I lie in bed. I am so much more content. Even the set backs seem easier.

Now for the bad news of my illness. I tried to die on my 30th birthday. I went into septic shock and for a few hours we watched my blood pressure. There was a nurse by my side the whole time and once I was at UAB there was a team of nurses. Not only was I in septic shock my lupus flared and I was completely unable to move. My pain level was around 1000 and they can't give you anything if your blood pressure isn't stable. I had to have an Art line put in. Its a device that is place in your wrist to monitor your blood pressure constantly, it is more accurate than a cuff. I had an emergency central line put in my neck. We found out that dopimine doesn't work on my. So they had to find something else. They aren't use to that. I ended up spending a week in the hospital before they felt that I was well enough to leave. I am greatful that I live thru my birthday. Hope it never happens again.

u

2 comments:

  1. Hey I have a quick question about your blog, could you email me when you have a chance? Thanks! -Cam

    ReplyDelete
  2. Looking for an update again...

    ReplyDelete